One hope for this website and my upcoming book is to reach out to family members of those affected with abnormalities of the skull and face and let them know some of us see the true beauty of that person despite their scars and imperfections.
I hope to share the knowledge I have gained and share it with the general public. I strive to push for awareness and wish for the general public to share in this awareness. I look for everyone to pass this knowledge onto their family and friends. Lastly, I pray that each heart will be opened and that everyone will discover, as said by Kahlil Gibran, "Beauty is not in the face; beauty is a light in the heart."
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Unfortunately people who are born a little different as well as their families can suffer medical hardships, confusion, fear, teasing, staring, misconceptions of intellect & some friends and family might withdraw from their lives. Fortunately, there are many organizations for family members of and for those born with a facial or skull abnormality to turn to. Below I have listed a few of the causes I have either been a part of or formed friendships with throughout my daughter's journey and through the journey of creating this website and forming this book. If I have forgotten any that are near and dear to you please Email Me and I will gladly add them to this page.
Craniosynostosis And Positional Plagiocephaly Support (CAPPSKids.org)

TheJorge Posada Foundation Jorgeposadafoundation.org)

CranioKids (CranioKids.org/Support)
Craniosynostosis Info (Craniosynostosis.info)

Cranial Technologies: Positional Plagiocephaly/ DOC Band (cranialtech.com)

Monroe Orthotics & Prosthetics: Positional Plagiocephaly/ Starband (monroeoandp.com)

Alexandra's P.H.A.T.E. /Plagiocephaly, Helmet And Torticollis Education (alexandrasphate.org)
Plagiocephaly Info (plagiocephaly.info)

Faces: The National Craniofacial Foundation (faces-cranio.org)
Childern's Craniofacial Association(CCAkids.org)

World Craniofacial Foundation(worldcf.org)
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Little Baby Face Foundation (littlebabyface.org)
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NORD - National Organization For Rare Disorders
A Few Friends we have made not associated with Craniofacial Causes but Worthy of mention non-the-less)

Andy's Army: Spinal Muscular Atrophy Awareness (andysarmy.com)
Drawchange(supplying children with the gift of art!)
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Learning Disabilities Association of America (ldanatl.org)

Caring Bridge (caringbridge.org)

Jimmy Wayne: Meet Me Half Way(help for homeless teens)

Friends Like Us (delivering teddy bears to children with Cancer)

Caps for Kids(celebity autographed caps for kids)
Born With Wings (provides support to anyone who has an Angel baby)
Megan's World (helping with financial assistance for Angel Parent's whose child was born sleeping)
NADS: National Association For Down Syndrome
Headlines(UK) (headlines.org.uk)
(headlines.org.uk) (headlines.org.uk) (headlines.org.uk) (headlines.org.uk) (headlines.org.uk)

Changing Faces - UK Org (changingfaces.org.uk)
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Friendly Faces (friendlyfaces.org)

Forward Face (forwardface.org)

MUMS: National Parent to Parent Network
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The Hemangioma Treatment Organization (hemangiomatreatment.org)

Cleft Palate Foundations (cleftline.org)
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Moebius Syndrome Foundation (moebiussyndrome.com)
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Parry-Romberg Syndrome Resource, Inc (prsresource.com)
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Facial Palsy Info(facial-palsy.com)

Operation Respect (dontlaugh.org)
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Operation Smile (operationsmile.org)
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The Ronald McDonnald House (rmhc.org)
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Love Quilts (sending handstiched quilts to injured or sick kids)

Cranio Caps(online at Facebook ~ handknitted caps for little noggins) 
Foundation for Faces of Children
Fixin' A Flat (a parents blog on Plagiocephaly)
Sixty Second Parent (Practical Parenting Advice)
Pilots For Patients ~ LA, USA ~
Air Charity Network - USA ~
Angel Flight - International
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Face The Future ~
Disability is Natural ~
Support for Special Needs
Cranio Angel Network formerly Avery's Angels

Leigha in her Avery's Angels Headband
~The Cleft Lip & Palate Foundation of Smiles
Many Faces of Moebius Syndrome
Copyright 2010 Beauty In Imperfection ~ Do You See Beyond The Shape of Me?. All rights reserved.
The information on this website should not be used for medical advice. Medical or health advice should be provided only by medical or health professionals